‘It’s like living in hell’ – Caregivers’ Experiences for Patients with Schizophrenia in a District of Probolinggo: ‘It’s like living in hell’ – Caregivers’ Experiences

Tomas Martin; Saiful Alam

doi:10.59747/smjidisurabaya.v3i2.131

Penulis

Tomas Martin Puskesmas Kuripan, Probolinggo
Saiful Alam

DOI:

https://doi.org/10.59747/smjidisurabaya.v3i2.131

Kata Kunci:

Caregiving, Mental health, Qualitative study, Schizophrenia

Abstrak

Background: Schizophrenia frequently results in significant distress and impairment across multiple domains, including personal, familial, social, educational, and occupational functioning. Caregiving for individuals with schizophrenia can result in substantial stress and burden for caregivers.

Objective: This study aims to explore the experiences of caregivers in providing care for patients with schizophrenia in a district of Probolinggo.

Material and Method: This study employed a qualitative research design, used interviews as the data collection method, and analyzed the data using inductive thematic analysis.

Results: The objective experiences comprised three main themes: (a) caregiving activities, (b) challenges encountered in caregiving, and (c) changes in caregivers’ lives following the caregiving role. The subjective experiences consisted of four main themes: (a) caregivers’ emotional experiences during patient care, (b) caregivers’ perceptions of the illness, (c) positive meanings derived from the caregiving experience, and (d) caregivers’ expectations for the patient.

Conclusion: Based on the findings of this study, caregivers experience a wide range of situations while caring for individuals with schizophrenia.

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‘It’s like living in hell’ – Caregivers’ Experiences for Patients with Schizophrenia in a District of Probolinggo